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BENEFITS AND ENTITLEMENTS
In New Zealand, we are very fortunate that the public health authorities fund the treatment and repair of cleft lip/palate.  You should not have to pay for any outpatient fees, time spent in hospital, orthodontic equipment, or (in most cases) feeding equipment.  However, having a child with a cleft lip and/or palate will still mean you do have some extra expenses.

To receive public health funding you must be a permanent resident of New Zealand or have New Zealand nationality.

Parents of children born with cleft lip and/or palate have compiled this information as a rough guide to the benefits you may be entitled to.  It is as accurate as we can make at the time of printing but you must speak to either a Social Worker or Needs Assessor for current details of entitlements in your local area.  You can also contact Work and Income (WINZ).

There are various benefits, both financial and practical, which you may be entitled to as the parent of a child born with cleft lip and/or palate.

High Frequency Health User Card
This can be obtained through your GP and can sometimes be utilised to get extra subsidies on prescriptions.

Child Disability Allowance
A Child Disability Allowance is available to people looking after a child with a serious physical or mental disability at home.  This allowance is not means tested.

Disability Allowance
The Disability Allowance is a supplementary allowance for people with a disability on a low income or receiving a benefit.

Carer Support / Respite Care
This is an allowance paid to an alternative caregiver, at the family’s request.  A Needs Assessment is required to access Carer Support by your Social Worker or Needs Assessor.

Don’t allow the names of these benefits to shock you - the words “handicapped” or “disabled” are simply used to describe a wide range of conditions.  In the vast majority of cases, a cleft lip and/or palate is a purely “cosmetic” condition.  Your baby will be otherwise healthy and develop normally.
Before applying for these benefits you need your child’s birth certificate.  Payment generally does not commence until the Needs Assessor receives the completed forms and cannot be backdated.  Members of your cleft team can assist you complete the required forms.

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    The Blue Book

  • A handbook for parents of children born with cleft lip/palate is now available. This book is free of charge to all new parents although a donation is appreciated if they are able. The Blue Book can be ordered for $20.00 - click here to order a copy, or to contact us about downloading the Bluebook in PDF format.