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Want to be part of the Support Group?

Posted on February 10th, 2007

2007 is looking a great year.  Lots of ideas, we have funding and a good set of skills in the committee.  Do you want to join us? 

We have a few extra hands sharing the workload this year. We have also developed an awesome online database. It will enable us to run the everyday activities of the support group very easily and efficiently.

So if you have ever thought about becoming more involved in the Support Group as a committee member………now is a great time.

Phone 0800 4 CLEFT (0800 425 338) OR E-mail: susan@cleft.org.nz

We also have projects prioritised, and if you are interested in any of these, let us know.

  • Visitation Service - this is to support new families of cleft children when their baby is first born. It involves traning of Support Parents, doing the visits, & organising the matches. It will also involve keeping in touch with Support Parents, organising social events and further training for them later in the year.
  • Youth Programme - this is an open project, right at the beginning. So if you have ideas about how to support young cleft adults and teenagers, if you want to offer the support, let us know.
  • Educational phamphlets to offer families at important developmental stages of their child’s life. eg; information to give the school when your child first starts.

Look on the calendar for upcoming meetings.

We meet once per month alternating at a North Shore location and an Ellerslie location. Meetings run between 7.30pm and 9pm. We have coffee and cake and generally catch up between agenda topics. We have made some really great new friends through the committee, and it is really rewarding to be part of making a difference to other family’s lives.

Next Meeting:
WHEN: Thursday, March 15th at 7.30pm

WHERE: OneSteel Office, Building 5, Level 1. 666 Great South Road, Ellerslie.

For more information ring Barbara on 0800 425 338

2 Responses to “Want to be part of the Support Group?”

  1. regina sellos
    April 2nd, 2007 05:35

    1

    I WOUL LIKEPAPERS ABOUT CLEFT LIP AND PAALTE MY NAME IS REGINA DENTIST MASTER DEGREE


  2. Mark
    May 4th, 2007 19:27

    2

    Hi Regina, we are a Support Group ran by parents of children with Cleft Lip & Palate in New Zealand. Unfortunately we are unable to offer any assistance with sourcing information on this subject for you in Brazil, as our countries most likely approach this in quite different and specific ways.

    Good luck with finding the info you need!


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  • A handbook for parents of children born with cleft lip/palate is now available. This book is free of charge to all new parents although a donation is appreciated if they are able. The Blue Book can be ordered for $20.00 - click here to order a copy, or to contact us about downloading the Bluebook in PDF format.