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Breastfeeding and Expressing Breastmilk


Breastfeeding a baby with a cleft palate (the lip can be either cleft or intact) is not easy. This topic is somewhat controversial and no set rules can be applied. You will be encouraged by some to give it a go (and may even be told that it is possible), others will tell you it is a waste of time and energy. The only advice we can really give is to follow your instincts and get as much advice and support as you can handle.

EXPRESSING BREASTMILK

  • The Early Days
    In the days following birth, your breasts will produce Colostrum (a thick yellowish fluid) which is packed full of nutrients and antibodies. It may be too early to start with an electric breastpump, your nipples will be quite tender, and Colostrum is more effectively expressed by hand. This is probably the first time you have done this and it will take a while to learn the technique. Be prepared to let a nurse/midwife or lactation consultant demonstrate the best method. Initially you will only be able to express a few mls. at a time – this is quite normal and the volume will increase with time. Every drop you express is precious so make sure your baby gets it. The idea is to express whenever your baby is hungry – you are mimicking the normal feeding pattern. In reality this will mean expressing as often as you can. At this stage your baby will probably be fed using either a teaspoon or a small cup. If your baby is hungry consider giving him/her some formula to keep their strength up. It is important to stimulate your breasts to bring in the milk (an important trigger is supplied by putting your baby onto the breast to attempt to breastfeed, hand expressing will also help). You and your baby may enjoy spending time together either attempting to breastfeed or letting your baby lick/play with your nipples. This can be very frustrating as right from birth a baby wants to be able to breastfeed and can smell the milk but can’t understand why they can’t get to it - try directly hand expressing into their mouth.
  • Finally the Milk Arrives
    Within a few days you will notice an increase in the amount expressed and a change in colour from the yellow Colostrum to a milkier colour. As the volume of milk expressed increases, using a teaspoon or small cup no longer becomes practical. You should by now have been seen by the Hospital Lactation Consultant (if you haven’t, ask to speak to one), your Plastic Surgeon and referred to a Speech-Language Therapist who will advise you on bottles to feed your baby with. At this stage you might like to consider either purchasing or hiring a breastpump.
  • Breastpumps
    If you are serious about expressing milk, it is worth investing in an electric breastpump rather than a manual one. An electric pump will not only shorten the amount of time you will spend expressing, it will also help to keep your supply going as they are supposed to mimic the way a baby feeds. There are two different types of electric pump available in New Zealand:
    • A mini-electric such as those produced by Medela and Pur/Tommee Tippee. These can be purchased from Chemists or baby care shops. These pumps will only express off one side at a time but are ideal as a back up to a larger pump or for being out and about (they can be run off either mains electricity or AA batteries). A double mini-electric (by Medela) is now available in NZ. Despite their relative expense, they are not designed for long-term expressing so it is not a good idea to rely solely on one of these.
    • A larger pump which allows you to express from both breasts at once, such as the Medela Lactina which can be hired from a Chemist who stocks Fisher & Paykel Healthcare products. Call F&P Healthcare customer service on 0800 800 631 for your nearest stockist. Your local hospital or Parent Centre may also have similar pumps available for rent. It is well worth shopping around and negotiating if you can, stating that you are feeding a child with a cleft and expect to be using the pump for many months. Prices vary widely.  You will also need to purchase the tubing and plastic cups– check with your local support group to see if anyone has a set they no longer need.
      The disadvantage of these pumps is that they are large compared to the mini-electric pump and do require a power source. The big advantage is that you can express both sides at once – this both cuts down the amount of time you spend expressing and helps to stimulate your supply. A word of caution – these large pumps rely upon mains electricity, so in case of power cuts you will need either a mini-electric pump with batteries, or hand pump which you are confident using.
  • Keeping the Milk Going
    In the early days when you are engorged with milk, getting enough to feed your baby may seem relatively easy. However, as things settle down your body will come to terms with the fact that it does not have a nice, sweet smelling baby to extract milk. Instead you are using a noisy, cold electric pump and you will probably find your milk supply dropping off.

There are many herbal remedies you can try (speak to a herbalist personally before trying anything, some ideas are: Blessed Thistle, Lactogogue tea, Fenugreek, Brewers Yeast, and Fennel). There is also a drug available on prescription in New Zealand called Maxolon that may increase your supply (it can also make you more tired though). The most natural and effective method is to apply the same principles that are used in breastfeeding to increase supply:

  • Increase the number of times you express each day. As a general rule try to keep in line with the number of feeds a baby of that age would take – in the first few weeks this is a minimum of  6-7 times in 24 hours. Practically this works out to expressing every three hours during the day, plus (if you are up to it) once during the night. Nighttime expressing during the first two weeks is ideal due to high prolactin levels at this time. To increase supply you may need to express every 2 hours for a couple of days. This will seem very hard work and requires a lot of self-discipline but does pay off.
  • Plenty of rest, nutritious food and lots of liquid (try to always have a glass of water on hand when you are expressing).
  • Look after yourself – you are doing a very important job and it is hard work. Be prepared to ask for help when you need it – your partner, family, friends, Plunket, etc.
  • Storage Guidelines
    Breastmilk storage guidelines seem to vary widely between publications, as a conservative guideline you may find the following useful. Breastmilk should retain its nutritional and immunological properties for a few hours at room temperature, up to 8 days in the back of the fridge (not on the door), and for up to 4 months in the freezer. Always label with an expressing date, time and expiry date. Frozen breastmilk should be thawed either overnight in the fridge or by placing the container in some lukewarm water. A microwave should not be used as it causes damage to milk components.

  • Helpful Tips from Expressing Mums
    • Get in a comfortable, warm position before starting to express – try to relax into it.
    • Do something fun and relaxing – watch TV, read a book, surf the net! Distract yourself from the inconvenience of being attached to the pump.
    • Massage the breasts, both before pumping and whilst on the pump. This will increase the volume and give a higher fat yield i.e. More calories.
    • Picture in your mind the milk being released.
    • Warm up the breast tissue before pumping – a warm flannel or wheat-bags are ideal.
    • Look at your baby whilst expressing, or have a photo and/or an article of clothing which smells of your baby nearby.
    • To aid letdown, make a tape of your baby crying (or listen to the real thing!)
    • If expressing off one side at a time, try propping your baby up on the other side to stimulate the nipple. Requires a lot of coordination but both you and your baby may enjoy this close time together.
    • Try hand expressing direct into the baby’s mouth – this will help stimulate your supply and can be close to doing the “real thing”.
    • Express until your breasts are empty – this stimulates your body to produce more. It is well worth expressing off the last few drops by hand to be sure that the breasts are completely empty.
    • Take one day/week at a time – you will know when the expressing is getting too much and it is time to wean onto formula. Follow your instincts and don’t be pressured by others views – this is your body and your baby, do what is right for you.
    • If supply drops off, spend a weekend “re-lactating”. Get some help for the baby/other children and concentrate on eating, sleeping, and pumping.
    • Cut out caffeine and, as it will reduce your supply.
    • As with breastfeeding, drinking alcohol is not recommended.
    • Freeze any excess milk – you never know when you may need it! If you have given up expressing by the time your baby has its operation, you may be able to give thawed breastmilk post-op (check freezing guidelines first).
    • If you have other children be aware of the effect expressing milk has on them – it is very time consuming. Perhaps try spending time with them whilst expressing – with some practice and ingenuity you will be amazed at what you can still do whilst on the pump!
    • Try to get in contact with other Mums who are expressing or have done so recently for emotional and practical support.
  • Other sources of information:
    • Lactation Consultants
      You should be seen by a Lactation Consultant whilst in hospital, if not speak to your Lead Maternity Carer and insist on seeing one.
    • Cleft Lip & Palate Support Group
      Make contact with other mothers who have/are expressing milk for the cleft lip/palate baby.
    • La Leche League
      Breastfeeding mothers support group - see your phone book for local contacts.
  • Bottles
    Haberman
    Although the Haberman (produced by Medela) looks rather complicated it actually works in a similar way to the Chuchu teat and squeeze bottle system. The baby can attempt to suck on the teat whilst the parent squeezes gently to express milk into the baby’s mouth.
  • Sterilising
    Either boil disassembled parts for 3 minutes or use a cold water method such as Miltons. (note: the valve membrane will last longer if sterilised using a cold water method).
  • Softcup Feeder
    The Softcup feeder produced by Medela is one of the methods used to feed babies in the post-surgery period (usually around 3 weeks) when they must not suck on a bottle. It is similar to the Haberman but has an open teat – like a large, soft spoon.
  • Feeding the baby
    1. Hold feeder horizontally, with a slight upwards angle (similar to the way you would hold a pencil).
    2. Begin the flow of milk by gently squeezing the two pads either side of the reservoir, this will release the milk into the feeding tip from the reservoir.
    3. Lay the tip of the reservoir on baby’s lower lip and tip the feeder so milk pours slowly into the baby’s mouth. Squeeze pads again to release more milk.
  • Sterilising
    Either boil disassembled parts for 3 minutes or use a cold water method such as Miltons. (note: the valve membrane will last longer if sterilised using a cold water method).
  • If the feeder is leaking check:
    Correct assembly?
    Is the valve stud inserted through the hole in the disk?
    Is the lid firmly screwed onto the bottle?
    Ensure that the milk is not too hot - this feeder is designed for tepid liquids.
    Check the valve membrane and reservoir for damage.
  • Flexicup
    This is basically a small (flexible) open cup which has a cut out to allow you to see around the child’s mouth as they feed. This cup is sometimes used during the post surgery period where sucking is not allowed.
  • Solids
    Babies are usually ready to start solids (pureed fruit/vegetable or babyrice) somewhere between four and six months. This is the same for a child with a cleft although you may find it takes a little longer to establish. Problems experienced with solids include nasal regurgitation (food coming out the nose via the cleft), choking and coughing, and refusing food in the mouth. Your speech therapist should be able to help you as it is important for the child to learn to take solids. Generally children with a cleft palate are not given hard foods until after any stitches have healed - your surgeon will advise on this.

 


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    The Blue Book

  • A handbook for parents of children born with cleft lip/palate is now available. This book is free of charge to all new parents although a donation is appreciated if they are able. The Blue Book can be ordered for $20.00 - click here to order a copy, or to contact us about downloading the Bluebook in PDF format.