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Real People


When you are facing something unknown and frightening it is often useful to hear how others have coped. We hope you will find these stories and photos helpful, you can also personally contact some of the parents but please respect the privacy of those who have not listed a contact number or address.

Would you like to share your story ?

We would love to make your story available for other parents. If you would like to share your story, please contact us!

8 Responses to “Real People”

  1. hayley
    June 7th, 2007 22:00

    1

    hi, how do you see the articles? there is no link to them! thanks


  2. The Makehams
    June 11th, 2007 16:19

    2

    Yes, I agree with Hayley. How can we read them?


  3. Mark
    June 12th, 2007 11:06

    3

    Hi there,

    These real life stories were included in the previous version of the Cleft Lip & Palate Support Group website. As yet, we haven’t been in a position to get them all transferred to the new site, but as there have been a couple of enquiries about this now, we’ll endeavour to get these online for you in the next week or so.

    You could subscribe to the RSS feed to get instant notification once the stories are uploaded.

    Sorry for any inconvenience!


  4. alesha
    August 23rd, 2007 16:04

    4

    I would love to read these stories plus I would like to add my own how do i do that?


  5. Philippa
    April 2nd, 2009 08:19

    5

    Hey there id like to shear a story im born with a bilateral cleft lip palate


  6. Barbara
    April 10th, 2009 12:50

    6

    Hi Philippa

    Please send your story to the support group by email to info@cleft.org.nz and we will be in contact with you.

    Thanks
    Barbara


  7. torch7618
    May 2nd, 2009 13:34

    7

    Hi, I am just wanting any information on bilateral double cleft lip palate. I am new to this condition and need all the input possible. My nephew has bilateral double cleft lip palate. I want to see what I can do for him and need a place to start. His mother is very very poor.

    Thank You,
    Barbara


  8. Ansari
    May 12th, 2009 22:51

    8

    Hi to every one.

    my baby was born last month and he has cleft lip + gum

    his palate is intact, can any buddy tell me an approximate cost that come on this surgery.
    BR
    Ansari


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    The Blue Book

  • A handbook for parents of children born with cleft lip/palate is now available. This book is free of charge to all new parents although a donation is appreciated if they are able. The Blue Book can be ordered for $20.00 - click here to order a copy, or to contact us about downloading the Bluebook in PDF format.